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PSP Survey

The University of Louisville, in coordination with the National Institute of Health, is studying Genetic and Environmental Risk Factors associated with Progressive Supranuclear Palsy. For further information go to: PSPStudy.com

Please use the above link whenever you go to Amazon.com. Any purchase using this link will aid us in raising funds for the continuation of our work.

      

Our Purpose

We aim to be the voice of those who have been stricken with Progressive Supranuclear Palsy (PSP) and/or other Parkinson's Plus neurological conditions.

We will be the place where they, their caregivers, families and friends will be able to find the information, guidance and support they need.

We welcome you here!

You are NOT alone!

Use this link to send us your comments, concerns and suggestions.

Search for Information...

We suggest you search for the information you need by entering your keywords below.

Visit and Join Our Forum...

We now feature two user forums. The oldest is part of our PSPInformation Yahoo Group. The second and newest forum is located at http://neuroforums.org. You are invited to visit and join either one or both. Regardless of which forum you pick, you will be meeting a fine group of individuals who share your interests and who are happy to offer you their support.

To join our Yahoo forum enter your email address below, press the "Go" button and introduce yourself to the group.

You can visit the PSPInformation Yahoo Group online at http://health.groups.yahoo.com/group/pspinformation/. Once you become a member of the forum you will receive copies of forum messages as they are posted. It's also possible to read messages previously posted to the forum by using this link.

The Neuroforums forum works a bit differently. You must register to read and post messages. The board's messages must be online. They are not reemailed to members.

Remember that information posted on our forums is provided for informational purposes only and is not meant to substitute for the advice provided by your own physician or other medical professional. You should not use information contained herein for diagnosing or treating a health problem or disease, or prescribing any medication.

Please Help Us...

We are always trying to make this website more useful and comprehensive. If it has helped you in some way we hope you feel the desire to help toward its continuation and growth.

Your help can consist of sharing your knowledge and experiences, providing words of encouragement, volunteering to help with the work and/or helping financially. We need you.

To help financially please consider using the links we provide to our sponsors when you shop online. These merchants have agreed to donate a small part of what you spend with them to support this website. Using our links will not increase your cost in any way. Look for the list of sponsors on the left-hand side of your screen.

A way to contribute financially via an electronic check, credit, debit or ATM cards is by using PayPal (which is owned by EBay). PayPal can also handle International transactions converting one currency into another. We've found PayPal to be safe, speedy and convenient.

To donate to the continuation of our work using Paypal press the "button" below.

And of course there is always the mail. Our address is PSPInformation.com, 2214 Heywood Ave., Charlotte NC 28208.

Folding@Home

We encourage you to join thousands of other computer owners in Stanford University's Folding@Home distributed computer project. The project uses a large network of individual computers and computer based game machines to process data looking for folding protein patterns that may eventually lead to cures for various neurological disease including Parkinson's, Alzheimer's and others.

The software runs in the background as you otherwise use your computer. It can also work as a screen-saver.

You can find out more about Folding@home, sign-up and download the associated software at: http://folding.stanford.edu/

Support Groups

We provide a listing of Support Groups for those with PSP and other neurologic diseases and their caregivers.

You can go to the listing by using this link.

If you are associated with a support group we will be glad to list it on our websites so others may find you.

Additional disease focused support groups are being formed. Anyone wishing to start a support group or add their existing one to our listings should contact the webmaster.

IGive will donate an extra $5 to PSPInformation.com as a "First-time" bonus when you join and purchase something within the next 45 days! You'll be able to shop in any of over 600 stores and it won't cost you a penny extra. Your purchases will help keep this website going. Tnank you!

For a current list of vendors press here.